Charity: The PXE Support Group (UK)
The PXE Support Group (UK)
CONTACT:
Elspeth Lax
TEL:
(01628) 476687
FAX:
Use E-mail Link
ADDRESS:
15 Mead Close, Marlow, Buckinghamshire, UK, SL7 1HR
LOCATION:
United Kingdom
CATEGORY:
Health
We support patients with PseudoXanthoma Elasticum and their families. Work closely with the NHS etc. PXE is a rare skin condition that robs over 60% of sufferers of their central vision. In order to save sight once any distortion is see you only have 10 days to save the sight by having an eye injection Lucentis or Avastin.